Comments on Renee's Reflections: Partners in Lyme: What Now?

Thanks S. for your encouragement and sharing your ...

2009-09-28T18:37:55.588-05:00

Thanks S. for your encouragement and sharing your LLMD's advice. So glad you have been having some better days! Your trip sounded so great.

hugs and prayers to both of you...and jsut wanted ...

2009-09-28T15:54:57.153-05:00

hugs and prayers to both of you...and jsut wanted to affirm your comment on 'listening to your body' and when it needs a break - give it a break!
i understand the apprehension and fear that is experienced even at the thought of not hitting the bugs with meds 100% of the time... however my LLMD has often reminded me that fighting lyme is not just about hard core bug killing all the time...absolutely letting your body (or joel's) take a breather is a wise choice.

:)
s.

Thank you Joanne. I really appreciate your comment...

2009-09-27T16:45:02.016-05:00

Thank you Joanne. I really appreciate your comments here and your knowledge and insights are some that I respect, from reading your blog. Drs are human just like us and each body is so different...they cannot know everything. Even though our LLMD listens to us, she has so many patients to see and work with! At times we frustrate her..especially me so that is a challenge too!
Thanks again, Joanne...for commenting here.

Hi Renee I don't often comment but keep coming ac...

2009-09-27T14:47:39.242-05:00

Hi Renee

I don't often comment but keep coming across you on other blogs.

I had to read this post and am glad I did.

'I believe more and more that we know our bodies better than anyone and when our bodies are talking loudly, we need to listen.'

You put into words so well what I am believing especially so with Lyme.

On Eurolyme a forum I belong to with a few visitors from US and Canada, I often say that we must find out as much as we can and be our own best advocates.

I admire my LLMD but do not believe he has all the answers. We live with our bodies and partners 24/7 and doctors see us for 30-60 mins once a blue moon.

Twice LLMD has tried to get me to stop antibiotics and even reducing has caused symptoms to deteriorate. The antibiotics I take I went on accidentally for something else and improved lyme symptoms. The ones LLMD put me on really did not appear to improve lyme symptoms although perhaps did improve others I hadn't associated with Lyme.

So keep that diary and experiment and learn as much as you can and stick with your gut feeling.

Very best wishes.

Thanks Jo, I needed to hear that.

2009-09-26T11:55:59.888-05:00

Thanks Jo, I needed to hear that.

What you are going through now will help others wh...

2009-09-26T10:59:20.571-05:00

What you are going through now will help others who come after.

Go with your guts, you are his advocate now.

In my thoughts.

thanks Lisa!

2009-09-25T19:36:45.659-05:00

thanks Lisa!

I'll keep praying for Joel and you.

2009-09-25T19:18:35.499-05:00

I'll keep praying for Joel and you.