After 6 weeks of better health, I am back to bonding with my sofa with what feels like a CFS/ME crash. I started to slide Sat. and continued my downward descent Sunday. Today I have been holding my own so that is a good thing! Now is the tricky part....a bit of energy and I am thinking, "Oh good, it is over!"...I jump back in to activity, and then Bam! Surprise.....I end up back on the sofa. That is not the plan this time around, so I am resting, wrapped up in my PJ's and Woolie, and snuggling in for a night of Dancing With The Stars.
CFS/ME is relentless and unforgiving, and needs to be carefully managed. If you want to watch an excellent video testimony of what it is like to live with severe CFS/ME, visit Laurel at www.dreamsatstake.blogspot.com.
Welcome!
I hope you find my writings interesting and inspirational. They are often filled with emotion because I write without many filters, and they are interwoven with my faith because I know no other way to live. May you find tidbits of information, a dash of humor, and much encouragement here. May this place be a sanctuary for your soul.
I hope you find my writings interesting and inspirational. They are often filled with emotion because I write without many filters, and they are interwoven with my faith because I know no other way to live. May you find tidbits of information, a dash of humor, and much encouragement here. May this place be a sanctuary for your soul.
Having lived with chronic illnesses for many years, I have spent a great deal of time viewing the world from my living room window. Being homebound, I have created an important sanctuary for myself. On my sofa I have fluffy pillows and a warm wool comforter affectionately named, "Woolie" that keeps me warm in the fall and winter, or during Lyme and CFS crashes. In front of me is my coffee table that holds my writing materials, remotes, cordless phone, etc. There is a photo of our family, and a photo of our oldest son and his friends in their police uniforms, to remind me to pray for their safety. The lower shelf is overflowing with stacks of books, papers, my Bible, and articles I am reading at the moment. I have easy access to my TV, stereo, and cds, and I am only a short distance from the kitchen and bathroom. My recliner is close by with my laptop "Libby" right next to it. It is a good place to be.
There is a beautiful view into our backyard, where squirrels, rabbits, robins, cardinals, finches, morning doves, goldfinches, and sparrows gather. Quite often a deer or two will cut a path through our connecting yards for us to enjoy. Trees, flowers, and bushes brighten the landscape. I have watched this view change from season to season, and never tire of its beauty. Even though at times I get tired of living life mostly from my living room, how safe and cozy I feel in my sanctuary. I am blessed.
There is a beautiful view into our backyard, where squirrels, rabbits, robins, cardinals, finches, morning doves, goldfinches, and sparrows gather. Quite often a deer or two will cut a path through our connecting yards for us to enjoy. Trees, flowers, and bushes brighten the landscape. I have watched this view change from season to season, and never tire of its beauty. Even though at times I get tired of living life mostly from my living room, how safe and cozy I feel in my sanctuary. I am blessed.
Monday, September 28, 2009
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10 comments:
Hey Renee.
I hope your crash doesn't get any worse and ends soon. You are very right to stay put on the sofa. When we get these bursts of energy, it's feels sooo great!! It's just so hard to be disciplined and not do too much...
Happy sofa bonding!! : )
It is a hard lesson to learn the ability to pace oneself but with chronic illness we are our own best advocates in this too.
Hope you can soon do without the sofa bonding.
Ah, the good ship Sofa.
Hope you feel better soon. You are in my prayers. :-)
Healing comes with the acceptance of what is necessary to get better.
You seem to know what you need to get well.
Thanks for the link in your post.
We all need to keep reminding each other of what is necessary to do to avoid worsening our symptoms.
Hi Treya
Thank you for your good thoughts. It is a good day to sofa bond with a very damp and cool day upon us.
Thanks Joanne!!!! Yes, we alone can put the boundaries that we need in place.
Yes...:-) The good ship sofa ~ We have all been there, done that!
Thanks Kara!
Hi Renee K
Yes, that acceptance is really important for healing isn't it.
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