Dr. V. told us that when taking Flagyl we needed to avoid alcohol at all times. Even mouthwash. It causes bad reactions. Not a big deal, as Joel and I do not drink alcoholic beverages. She also said to take the highest dose of Flagyl UNLESS you act drunk. I have been on 1,000mg for 4 days and yesterday Joel told me he noticed that I was acting "silly" and not saying the "right" words at times. I am also having a bit of trouble walking straight. I keep weaving to the side. It continues today but has not gotten any worse. I think I have spent most of my energy coping with the bone and nerve pain and not thought about anything else. We have questioned how we would know if we were acting drunk, so I did look up info on google, and the staggering was mentioned. I do think my current symptoms could be from the Flagyl, but we also wonder if it could just be the Lyme die off that is causing these symptoms.
Is it Lyme or am I just loopy??
I want to keep taking the Flagyl so I can get rid of the H Pylori 100%. Time will tell. Meanwhile Joel has banned me from carrying around anything made of glass and I am walking very slow and careful. He is home this week to keep track of his unbalanced wife! (I think I may have been unbalanced before I started this journey.) I am just so excited that I have made it through 4 days. Dr. V thought I would only make it 3 before my body rebelled.
Speaking of Joel, he started his protocol today. He is only on one med...1,000mg a day and will add Zithro next week. I figure he has one more day before "it" hits. He also has about 14 supplements to take each day. He has a cast iron stomach so it should go well. He is putzing today on his porch. He hung up a candle lantern, and put up new house numbers. We will hang the chimes tomorrow. We have not put them back up since moving here 5 years ago. Then our flag will follow. How fun.
What a journey we are on. At times we both just look at each other, take a deep breath, give each other a long hug, and remind one another we will get through this. Others have and we will too. One Lyme loopy day at a time.
Welcome!
I hope you find my writings interesting and inspirational. They are often filled with emotion because I write without many filters, and they are interwoven with my faith because I know no other way to live. May you find tidbits of information, a dash of humor, and much encouragement here. May this place be a sanctuary for your soul.
I hope you find my writings interesting and inspirational. They are often filled with emotion because I write without many filters, and they are interwoven with my faith because I know no other way to live. May you find tidbits of information, a dash of humor, and much encouragement here. May this place be a sanctuary for your soul.
Having lived with chronic illnesses for many years, I have spent a great deal of time viewing the world from my living room window. Being homebound, I have created an important sanctuary for myself. On my sofa I have fluffy pillows and a warm wool comforter affectionately named, "Woolie" that keeps me warm in the fall and winter, or during Lyme and CFS crashes. In front of me is my coffee table that holds my writing materials, remotes, cordless phone, etc. There is a photo of our family, and a photo of our oldest son and his friends in their police uniforms, to remind me to pray for their safety. The lower shelf is overflowing with stacks of books, papers, my Bible, and articles I am reading at the moment. I have easy access to my TV, stereo, and cds, and I am only a short distance from the kitchen and bathroom. My recliner is close by with my laptop "Libby" right next to it. It is a good place to be.
There is a beautiful view into our backyard, where squirrels, rabbits, robins, cardinals, finches, morning doves, goldfinches, and sparrows gather. Quite often a deer or two will cut a path through our connecting yards for us to enjoy. Trees, flowers, and bushes brighten the landscape. I have watched this view change from season to season, and never tire of its beauty. Even though at times I get tired of living life mostly from my living room, how safe and cozy I feel in my sanctuary. I am blessed.
There is a beautiful view into our backyard, where squirrels, rabbits, robins, cardinals, finches, morning doves, goldfinches, and sparrows gather. Quite often a deer or two will cut a path through our connecting yards for us to enjoy. Trees, flowers, and bushes brighten the landscape. I have watched this view change from season to season, and never tire of its beauty. Even though at times I get tired of living life mostly from my living room, how safe and cozy I feel in my sanctuary. I am blessed.
Monday, June 29, 2009
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4 comments:
Oh Renee~
How great to be back online and read your posts! I have had that "Lyme or Loopy" question in my head before -- for me we figured out that it's def. the Lyme ... I hope you get it straightened out and are able to continue on your protocol. Prayers for Joel as he starts his as well!
~Pamela
Hello PJ
I have been checking your blog periodically.....so GLAD you are back on line too..I have missed you :) Hope your little guy is doing well and you too.
Hope things get straightened out soon too....
Sounds almost like a neuro herx or the lyme. Isn't Flagyl, in addition to curing h-pylori but also a cyst buster for lyme?
I got a good chuckle out of your post.
I'm keeping you and Joel in my prayers.
Terri
It IS Terri, a cyst buster. Nasty is the only word I can think of.
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